Welcome to Neuro-Lyme.com

 This website has been created to help - if you are suffering with Neuro-Lyme symptoms, YOU ARE NOT ALONE!

NEWS FLASH:  A new treatment developed to help those with MS appears to potentially help those of us with the harsh and enrelenting symptoms of neuro-Lyme. 

See: http://www.lymediseaseresource.com/wordpress/chronic-lyme-disease-and-ccsvi/

Watch:

When I was first diagnosed with Lyme disease, I felt so relieved! Months of non-conclusive tests, frustrating evaluations, and the growing sense of insanity...it was going to be all behind me now! I had Lyme disease, and I was actually relieved to have all that fear and worry over.

Little did I know that my nightmare had only just begun.

That was over three years ago.

Life has been a living hell for the last years, and there is no end in sight.  My LLD believes that I have been suffering with Lyme for so long that my immune system haqs been unable to continue fighting, Bartonella, Mycoplasma and Parasites.

Yes, it finally explains the mystery illnesses that caused multiple organs to be surgically removed without a clear diagnosis.  And yes, it also explains my severe and frquent migraines, frequent flu-like symptoms, profound weakness, my mysterious loss of hearing, and the excrutiating pain in my abdomen, throat, joints and the soles of my feet that would come and go...

Does any of this sound familiar?

Well, I used to do most of my work on the computer, so it was natural for me to begin my search for answers there.  But after weeks of searching, while my symptoms were going from bad to worse, I finally gave up trying to make sense of the conflicting information on the computer, and started buying books instead, and joining forums to get answers to my many questions. 

That is when I began to really understand the complexity of my disease.

Lyme disease is the fastest growing infectious disease in the world.

Without reliable testing and treatment programs, thousand upon thousands of people are slipping through the cracks and developing chronic cases of Lyme, especially neurological Lyme.

Also, with spirochetes infecting all bodily fluids, sexual transmission is adding to the "Tsunami" of chronic neurological disease that is spreading all over the world.

Neuroborreliosis (the correct term for Neuro-Lyme), encompasses any type of Lyme disease that has invaded the central nervous system.

Studies at the SUNY Medical Center have proven that Lyme spirochetes can infiltrate the central nervous system within 24 hours of infection, so even though neurological symptoms may take weeks or months to appear, the number of victims is certainly much higher than presently recognised.

Given the fact that there are very few experienced and knowledgeable specialists treating Lyme disease, there are even fewer capable of understanding and treating neuroborreliosis.

As with Lyme arthritis and other forms of chronic Lyme disease, the patients most often requires access to the most recent developments in science and medicine with respect to their unique presentation of the disease.

This can be a lonely and frightening aspect of an already terrifying illness. 

Blessings,

Jenna

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